If you live in the USA, this has Terri Schiavo-energy all around. It’s different, I know. Terri was alive and braindead. This infant is gonna die. The court is sparing the infant pain.
But why would you keep a child alive to suffer? It’s like Terri in that the parents refuse to think about anyone other than themselves. That’s just cruel / terrible / bad.
If her doctors are unable to manage pain then her parents should be allowed to find doctors who can.
She isn’t the first child with this disease, after all. And withdrawal of support is certainly not standard of care for patients like her.